Together is better
“The LORD said, “Behold, they are one people, and they all have the same language. And this is what they began to do, and now nothing which they purpose to do will be impossible for them.”
Through grief, a mother found COURAGE and FAITH by standing on the WORD of GOD to PRAY through her journey of autism for her son Jayson!
M.J.’s willingness to share her journey of autism is not only to reveal her ups and downs but more importantly she hopes to help parents and caregivers move from feeling overwhelmed, exhausted, sad, rejected, separated from family and friends and has questionable doubts about the diagnosis of autism and the families eventually getting to a place of tranquility, peace, acceptance, humbleness, rest, trusting, and surrendering to the will of GOD and standing on HIS promises!
The author of How the small “a” autism taught me to PRAY BIG now makes it her goal to speak and educate others about autism; Lastly Mojoko believes that “just because you are getting help for your child, it doesn’t mean that you are “accepting” anything!” Christ teaches us: “My grace is sufficient for you, for my power is made perfect in weakness.” Paul, the author of II Corinthians, goes on to say “Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.” – 2 Corinthians 12:9-11
Therefore my dear friends, during these moments of tribulations, we should stand firm knowing with all of our hearts that we are “…convinced that neither death nor life, neither angels nor demons,neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.” – Romans 8:38-40
✦Your approach to the diagnosis makes all the difference
⭒What is Autism?
⭒The American Psychiatric Association defines Autism Spectrum Disorder as a complex developmental condition that involves persistent challenges in social interaction, speech and nonverbal communication, and restricted/repetitive behaviors.
⭒What does the diagnosis mean to you?
⭒Do you need a second opinion?
What’s next for you and your child and how do you manage it all ?
⭒How do you appropriately grieve after the diagnosis?
Take your time through each stage of grief (denial, anger, bargaining, depression and acceptance) – repeat each several times if necessary
⭒While going through grief, also start early intervention for your child ⭒Make sure your child’s PCP is your best friend during this time⭒Take as much time as you need to educate yourself. Education equals Empowerment, which will ultimately benefit your child. You are your child’s VOICE, therefore ADVOCATE with AUTHORITY!
⭒Is this a taboo?
⭒Is this a curse from my ancestral bloodline?
⭒Us not getting help for our kiddos, is that selfishness and excuses or real
⭒Reasons of not exposing our household?
⭒Never make a permanent decision over a temporary condition – T.D. Jakes
✦Remaining and staying hopeful during this long journey – for you, your kiddo and for the family (DEVOTIONS)!
Your choice determines your change
- ⭒Suffering has to happen (there is a season for planting and a Season for harvesting) therefore we must change what we value “I have told you all this so that you may have peace in me. Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world” – John 16:33.
⭒Power of prayer (doesn’t need proof, needs practice)
⭒Holy Spirit’s guidance and Surrendering to the will of God
⭒You see more on your knees than when you are on your feet
⭒Jesus has given us authority and HE is who was healing back then, is still Jesus NOW!
✦ Ultimately everything we do daily, should be to glorify God!
⭒In everything give thanks: for this is the will of God in Christ Jesus concerning you.-1 Thessalonians 5:18
✦Choosing between Early Intervention for your child vs. Providing for your family
⭒Resigning/loss of job
⭒Too many appointments (Advocating for a Driving/respite service)
⭒Frequent call outs from early pick up from school or daycare
⭒Possible eviction from home
⭒Moving in with family members in order to accommodate the situation
⭒Causes more and more delay for the kiddo
⭒Continue to fall behind in socialization, communication and Interaction with others
⭒Child’s risk of not having a “normal” life
⭒Not able to function or cope in society
⭒ Will our children be able to get a job, get married and get to
the point in their lives of having their own children/families?
✦Challenges in and out of the home
⭒Difficulties with other children in the home
⭒Difficulties and the strain it could cause between other family members
⭒Challenges when out in the community, especially at a school-based setting
✦Availability and access to developmental/behavioral institutions that aid as a resource for parents and kiddos i.e Kennedy Krieger
⭒Wait list is ridiculous (parents want help NOW)
⭒Staff is burnt out, therefore the turn over rate is also high and kiddos need to Build relationships with these providers in order to build rapport and trust in order for treatments to be successful. (Advocating in the future for other institutions like KKI)
⭒Does a family have to sacrifice to relocate completely from one state to another just to get the help they need to get the services he/she needs(at the expense of everyone else in the family)?